I was hoping to commend this new allergy site, http://www.infoallergy.com, launched as part of the European Allergy Conference which has been bringing together specialists all week.
The conference, run by the European Academy of Allergy and Clinical Immunology, has been impressive with some impressive findings. The news service is picking some of them up.
I've thought this organisation is a little mercurial and the incomplete nature of the web-site tends to confirm this. Even worse it's definition of allergy is a little incomplete - and guess who barely features?
Yes, salicylate hypersensitivity is, kind of, not there. In fact I have found it - and that's where there's a big inconsistency.
For there is a section on "allergic" reactions to NSAIDs - that's medical-speak for aspirin and nurofen and similar drugs. And from this I learn you can suffer from "non allergic hypersensitivity reaction" - which gives reactions similar to allergy. I also learn there's a relationship to Samter Triad. If you have it you are "specially at risk". You probably knew that if you knew you had Samter Triad (the Triad is a runny nose, nose polyps and asthma, caused by salicylates).
The difficulty is the real and daily problem comes from salicylates in food, not in aspirin. And when you turn to the food section of the site there is no mention of this at all. So if your food is giving you hives and runny nose and swollen lips and throat - and all the other symptoms - you may well be stuck.
Euro-clinicians, you can do better than this!
RAS
Monday, June 13, 2011
Wednesday, June 08, 2011
Where's all the red cabbage gone?
Does anyone know? Red cabbage is a staple of my diet. It is in fact pretty well the only red fruit or vegetable that I can eat, which is supposed to be salicylate free.
For several weeks now it has been unobtainable in the main supermarkets. I checked tonight in Asda again - plenty of white cabbage but no red. Where on earth has it gone? Is it some kind of seasonal thing? Are the Germans using it as a salad substitute. It is a mystery.
RAS
For several weeks now it has been unobtainable in the main supermarkets. I checked tonight in Asda again - plenty of white cabbage but no red. Where on earth has it gone? Is it some kind of seasonal thing? Are the Germans using it as a salad substitute. It is a mystery.
RAS
Tuesday, June 07, 2011
Hedging
I've employed someone to do my hedges in recent years but he's quite expensive, leaves it late and doesn't shape it quite the way I like.
So I got in before him this year. I have electric trimmers but they are on permanent loan somewhere. So I used hand shears and got about half the hedges done to my satisfaction. On reflection I realised this was a good move. An electric trimmer causes a spray of dust, wood and leaf. Just the thing to cause a pseudo-hay fever reaction. With hand shears there was no spray and no hay fever.
My gardener was not too pleased and did all my work over again. But the hedge is the shape I wanted it.
RAS
So I got in before him this year. I have electric trimmers but they are on permanent loan somewhere. So I used hand shears and got about half the hedges done to my satisfaction. On reflection I realised this was a good move. An electric trimmer causes a spray of dust, wood and leaf. Just the thing to cause a pseudo-hay fever reaction. With hand shears there was no spray and no hay fever.
My gardener was not too pleased and did all my work over again. But the hedge is the shape I wanted it.
RAS
Monday, June 06, 2011
Burger King
I was in Burger King and, as always, it was quite impossible to find a salad. I thought I would risk a Chicken Royale. The plain version seems to come with lettuce and mayonnaise and seemed fine. There was no taste of pepper on the chicken.
Then I spotted their diet sheet. It's an impressive document which has 20 columns setting out the content of all the menus. It tells you about carbohydrate and proteins, vegetarian choices and even sulphur(sulfur to my US friends) dioxide.
In fact there are 11 columns devoted to allergens, including milk, fish and crustaceans. There is egg and celery. But inevitably there is no mention of salicylates. Why is this always the case? I have met dieticians socially several times recently and they are all primed to deal with the problem. Not expert but they know where to look for advice.
So good marks to Burger King for producing a low-salicylate choice, good marks for trying and bad marks for not finding a column for this one.
RAS
Then I spotted their diet sheet. It's an impressive document which has 20 columns setting out the content of all the menus. It tells you about carbohydrate and proteins, vegetarian choices and even sulphur(sulfur to my US friends) dioxide.
In fact there are 11 columns devoted to allergens, including milk, fish and crustaceans. There is egg and celery. But inevitably there is no mention of salicylates. Why is this always the case? I have met dieticians socially several times recently and they are all primed to deal with the problem. Not expert but they know where to look for advice.
So good marks to Burger King for producing a low-salicylate choice, good marks for trying and bad marks for not finding a column for this one.
RAS
Sunday, June 05, 2011
A dose of sunshine
I popped into the beach shop and scanned the ingredients of a limited range of sun tan lotions. Carrot seemed possible - except I have no wish to sprout orange skin. They had an Aloha! oil made from aloe vera and promising Factor 15 protection. Apart from aloe there seemed nothing in the ingredients to cause problems and I reasoned an oil would be purer than a cream. I had studied a Nivea children's cream, which explicitly contained salicylate for some reason.
Now I have always avoided aloe. It doesn't appear on lists because you don't eat it but I tend to assume any unknown vegetable matter is risky. Without having a chance to check anything, I hoped it was made from a flower rather than anything else. I have now checked and that doesn't seem to be the case.
So does anybody know whether aloe contains salicylate?
Possibly not. I followed the instructions and applied it liberally throughout the day. There was no hives but when my knees reddened I could not be sure whether it was the cream or the sun.
Sometimes a gamble pays off. No sunburn and no discernible reactions, apart from a slight runny nose for the last couple of days - but that could be triggered by several factors.
Now I can look forward to the rest of the summer. Aloha!
RAS
Friday, May 13, 2011
Trying blue cheese
Some blue cheese appeared in our fridge. I used to eat a lot as it seemed like the only thing food I could eat with any taste.
Then The Splodge appeared on my chest. A dose of penicillin for a tooth infection led The Splodge to grow, covering much of my chest - and that led me to discover that the blue bits in Stilton cheese are actually penicillin. So blue cheese had to be abandoned and the Splodge became Australia before finally being burnt off by the sun during our holiday last year.
With The Splodge well and truly gone I thought I might be safe to try a little cheese. Well The Splodge has not reappeared on my chest. But a red, scabby rash about the size of a finger-nail has appeared on my tummy. It could be a coincidence but I don't think I will risk it. No more blue cheese for a while, I think.
RAS
Then The Splodge appeared on my chest. A dose of penicillin for a tooth infection led The Splodge to grow, covering much of my chest - and that led me to discover that the blue bits in Stilton cheese are actually penicillin. So blue cheese had to be abandoned and the Splodge became Australia before finally being burnt off by the sun during our holiday last year.
With The Splodge well and truly gone I thought I might be safe to try a little cheese. Well The Splodge has not reappeared on my chest. But a red, scabby rash about the size of a finger-nail has appeared on my tummy. It could be a coincidence but I don't think I will risk it. No more blue cheese for a while, I think.
RAS
Sunday, April 24, 2011
Pink fingers
Easter weekend was going to be challenging as we have had a great deal of family festivity. And we are enjoying an astonishing bout of late April sunshine - the air is awash with various kinds of seed, blossom and pollen. I don't get allergic hay fever, so I'm told - but I seem to get pseudo-hay fever caused by exposure to floating vegetable matter.
I've been taking montelukast daily for the last few days - and have also concentrated on eating fish - following the reappearance of the speckled rash on my belly as well as the odd symptom of sinusitis.
We went to a Thai restaurant, where I ordered prawn crackers, trout and egg fried rice. You never know for sure what other spices and herbs have been added - I was hoping not too many to these dishes.
When I pressed anything against my fingers during the meal, a bright pink rash appeared. At first I thought it was just my index finger, which I'd burnt on a light bulb the night before. I thought it was a kind of blistering - but it did not last long. However these rashes appeared on the fingers of both hands. They were a kind of bright pink - I tried to find the colour and consulted this site http://www.december.com/html/spec/color4.html. Spicy pink perhaps? Well it was a Thai restaurant.
Today there is no sign of this happening. Weird.
Using the ever-helpful Wikipedia I've found a benign condition called dermatographic urticaria. It seems the best explanation for the moment.
RAS
I've been taking montelukast daily for the last few days - and have also concentrated on eating fish - following the reappearance of the speckled rash on my belly as well as the odd symptom of sinusitis.
We went to a Thai restaurant, where I ordered prawn crackers, trout and egg fried rice. You never know for sure what other spices and herbs have been added - I was hoping not too many to these dishes.
When I pressed anything against my fingers during the meal, a bright pink rash appeared. At first I thought it was just my index finger, which I'd burnt on a light bulb the night before. I thought it was a kind of blistering - but it did not last long. However these rashes appeared on the fingers of both hands. They were a kind of bright pink - I tried to find the colour and consulted this site http://www.december.com/html/spec/color4.html. Spicy pink perhaps? Well it was a Thai restaurant.
Today there is no sign of this happening. Weird.
Using the ever-helpful Wikipedia I've found a benign condition called dermatographic urticaria. It seems the best explanation for the moment.
RAS
Tuesday, April 12, 2011
National Allergy Week
I've just discovered it's supposed to be National Allergy Week in the UK. That's the week after World Allergy Week - now that's excellent timing. In fact it's so well co-ordinated that the nation's allergy specialists declared their backing for World Allergy Week last week, missing out their own National Allergy Week.
Is it too much to hope that a national week is truly national and involves all parties? Even better that the national week takes place at the same time as the world week? If you follow these things even a little, you will know there's a surplus of special weeks and days - sometimes they seem little more than a PR stunt. So to make an impact, a Week needs a lot going for it. Two weeks on the same topic one after the other are guaranteed to flop.
So far as I can tell National Allergy Week centres on Allergy UK. I checked their Facebook page but there's nothing there. However their web-site has a press release, which reflects what the British Society for Allergy and Clinical Immunology said last week.
In fact their entire PR strategy seems to centre on Weeks - three of them in the last year. This is the list of press releases on their site for the last 12 months. There's just five of them:
RAS
Is it too much to hope that a national week is truly national and involves all parties? Even better that the national week takes place at the same time as the world week? If you follow these things even a little, you will know there's a surplus of special weeks and days - sometimes they seem little more than a PR stunt. So to make an impact, a Week needs a lot going for it. Two weeks on the same topic one after the other are guaranteed to flop.
So far as I can tell National Allergy Week centres on Allergy UK. I checked their Facebook page but there's nothing there. However their web-site has a press release, which reflects what the British Society for Allergy and Clinical Immunology said last week.
In fact their entire PR strategy seems to centre on Weeks - three of them in the last year. This is the list of press releases on their site for the last 12 months. There's just five of them:
- National Allergy Week: 11th - 17th April 2011
- Food Allergy Intolerance Week: 24th - 28th January 2011
- Indoor Allergy Week: 25th - 29th October 2010
- Allergy Friendly Hotels
- National Allergy Week: 10th - 14th May 2010
- Indoor Allergy Week: 14th -20th November 2011
- Food Allergy and Intolerance Week: 23rd - 29th January 2012
- National Allergy Week: 23rd - 29th April 2012
- Indoor Allergy Week: 12th -18th November 2012
RAS
Monday, April 04, 2011
#worldallergyweek
I've been asked to support World Allergy Week by using the hashtag in the title. It doesn't seem to be getting going - and that's a shame.
Looking into this, I get the impression the week is driven by the World Allergy Organisation - which is mainly doctors. As these problems affect millions, especially at this time of year when hay fever gets going, isn't it about time the victims helped to get things going?
It's interesting when you look at the statement from the British Society for Allergy, reported here, that they are still at the stage of training GPs in diagnosis. Isn't that alarming? Most GPs probably do a little better by giving people prescriptions also. But I noted the World Allergy Organisation refers to "multiple organ" problems increasing. Now if you have salicylate hypersensitivity you know what that means .... everything from the eyes to the knees. That can mean a host of minor symptoms and, if you have to take them to the GP, you really need the doctor to understand the underlying issues.
RAS
Looking into this, I get the impression the week is driven by the World Allergy Organisation - which is mainly doctors. As these problems affect millions, especially at this time of year when hay fever gets going, isn't it about time the victims helped to get things going?
It's interesting when you look at the statement from the British Society for Allergy, reported here, that they are still at the stage of training GPs in diagnosis. Isn't that alarming? Most GPs probably do a little better by giving people prescriptions also. But I noted the World Allergy Organisation refers to "multiple organ" problems increasing. Now if you have salicylate hypersensitivity you know what that means .... everything from the eyes to the knees. That can mean a host of minor symptoms and, if you have to take them to the GP, you really need the doctor to understand the underlying issues.
RAS
Friday, April 01, 2011
World Allergy Week
Spring is stuttering into place in the UK. The trees and flowers are budding and blossoming while the weather alternates between hot and cold.
So, yes, it's a good time for World Allergy Week, which starts on Monday. To mark the occasion, I've remembered to get my repeat prescription, which I have managed without for several weeks.
Details here
RAS
So, yes, it's a good time for World Allergy Week, which starts on Monday. To mark the occasion, I've remembered to get my repeat prescription, which I have managed without for several weeks.
Details here
RAS
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